Global Twins and Multiples Priority Setting Partnership Survey


What questions would you like future research to answer for the health of multiples?

Multiples present many strengths, but also unique challenges for families, health care professionals, and wider society. ‘Multiples’, include twins, triplets, quadruplets and, higher order multiples.

To reduce complications and deaths associated with multiple pregnancies, and to improve long term health, we are bringing together multiples, parents, carers, clinicians, and scientists in a Global Twin and Multiple Priority Setting Partnership. This partnership will identify the top 5-10 research questions for the health of multiples.

For more information watch this short video of Professor Asma Khalil explaining how this project will make a difference to twins and multiples.

 

Who we are

The Global Twin and Multiple Priority Setting Partnership is a collaboration between Twins and Multiple Births Association (TAMBA) UK, St George’s University of London, and Twins Research Australia. It is being led by Professor Asma Khalil, St George’s Medical School, University of London. This partnership seeks to bring together multiples, parents, carers, clinicians, researchers, scientists and clinical educators to improve the health and wellbeing of multiples and their families.

More information is available here: Global Twins and Multiples Priority Setting Partnership.

 

What are we doing?

We are asking multiples, parents, carers, clinicians, researchers and clinical educators to help identify the most important research questions to benefit the health and wellbeing of multiples and their families. This partnership aims to ensure research on the health of multiples answers questions that matter to multiples, parents and caretakers of multiples, as well as clinicians and scientists.

 

Your opportunity to help

If you are a multiple, parent or caretaker of multiples, or an experienced health or social care professional who cares for multiples, we would like to hear your suggestions. Including your views will give credibility to, and help guide, national and international health research priorities for multiples.

 

How can I contribute?

You are invited to complete two online surveys.

1.   The first survey (on the next page), will ask you to suggest 1-3 unanswered research questions you think are important for the health of multiples. Areas of “health” include development, disease, emotional, and mental wellbeing, etc. Your questions will contribute to an interim list of priority research questions.

2.    The second survey (in approximately six months’ time), selecting and ranking up to 10 research questions you think are important, from the interim list of priority research questions.

Each survey will take approximately 15 minutes to complete. Your contributions will be anonymous. Should you decide to participate, it’s important that you complete both surveys to ensure the final results are accurate.

You will also be invited to attend an optional workshop to determine the final top 5-10 research questions. We expect this to be held in 2019.

Participation in the above tasks is completely voluntary.

 

Please contact us if you have any questions

Janine Lam, Project Co-ordinator
email: janine.lam@unimelb.edu.au

Professor Asma Khalil, St George’s Medical School, University of London
email: akhalil@sgul.ac.uk

Keith Reed, Twins and Multiple Births Association, UK
email: KeithReed@tamba.org.uk

Jenny Boadle, Twins Research Australia, The University of Melbourne
email: jboadle@unimelb.edu.au

Dr James Duffy, Balliol College, University of Oxford
email: james.duffy@balliol.ox.ac.uk