Have you ever wondered how the ATR uses your membership information and results from your study participation? 

The confidentiality of our member information is of paramount importance to us and we have strict protocols in place to ensure member privacy. 

The ATR collects information about its members both at the time of registration and during the life of your membership. All information concerning our members is kept strictly confidential. Personal details are not given out without the prior consent of the individual concerned.

As an ATR member, your personal information is held for the purposes of: 

  • Inviting you to participate in new twin studies you may be eligible for.
  • Updating you with findings and/or progress related to a study in which you’ve been involved.
  • Research which may be presented in publications, conferences and general media. In these instances any information will always be presented so that individuals cannot be identified.
  • Seeking feedback from you about our services.
  • Letting you know about other information relating to the registry, such as twin festivals and fundraising events, general twin research.
  • Checking your details against the Australian and state electoral rolls.

As a member, your involvement with the registry and any associated study is always voluntary and you can withdraw at any stage.

We hope this helps you to understand our database protocols and management. If you have any further questions, please let us know at This email address is being protected from spambots. You need JavaScript enabled to view it.

Twins Research Australia

Address: 3/207 Bouverie St
Carlton, Vic 3010

Email: info@twins.org.au

ABN: 84 002 705 224

Twins Research Australia has received continuous funding from the National Health and Medical Research Council (NHMRC) since 1981, most recently through a Centre of Research Excellence Grant (2015-2022). TRA is administered by the University of Melbourne.

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