Twins Research Australia takes its ethical and privacy responsibilities very seriously.
The NHMRC has published a National Statement on Ethical Conduct in Human Research. The statement emphasises each institution’s responsibilities for the quality, safety and ethical acceptability of research that they sponsor or permit to be carried out under their auspices.
This statement includes those institutions whose “employees, resources and facilities are involved in research”. TRA is invested with responsibility under these guidelines to monitor the ethical conduct of its own activities and the activities of research projects that involve TRA members. This is a responsibility we take very seriously.
In 2007, TRA was awarded University of Melbourne Human Research Ethics Committee (HREC) approval for the “Program of Work” that we supply to researchers. This covers all of our operational policy and procedures, from the discussion and approval of a project to the way we invite twin members to participate and the way we report to our key stakeholders and the NHMRC regarding our progress. The document is presented in the form of an Operational Manual.
The current ethics program number for the Australian Centre of Excellence in Twin Research is: 1545015.1.